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Lysosomal Storage Disorders Support Society (LSDSS) logo

Lysosomal Storage Disorders Support Society (LSDSS)

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Delhi patient-led group that put lysosomal storage disorders and rare diseases on India's policy agenda

Healthcare
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Lysosomal Storage Disorders Support Society (LSDSS) is a New Delhi-based, pan-India patient organisation founded in 2010 by parents and caregivers of children with lysosomal storage disorders (LSDs). It was the first patient group in India to bring LSDs and rare diseases into national policy discussions, and it works on early diagnosis and screening, treatment-access assistance, government advocacy for sustainable care models, and counselling and support for affected families. Its focus spans seven LSDs including Gaucher, Pompe, Fabry, MPS, Niemann-Pick, Tay-Sachs and metachromatic leukodystrophy.

New Delhi, DelhiSince 2010

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