Photo published by Organization for Rare Diseases India
Prasanna Kumar Shirol is the co-founder of Organization for Rare Diseases India[1], an Indian non-profit working on healthcare.
Organization for Rare Diseases India
ORDI is a national umbrella organization set up as a section-25 non-profit company to represent the collective voice of rare disease patients in India. It works on public awareness, policy development, clinical trial facilitation and collaboration with advocacy groups and medical institutions.
Organization for Rare Diseases India reports the following, on its own site:
- 8,250 rare-disease patients associated
- 372 patients had treatment facilitated, worth Rs 284 crore
- 40,300 Race for 7 mass awareness participants
- 3,300 doctors supported ORDI events
- Organisations
- 1
- Based in
- India
- Founded
- —
- Press
- 1
References
- [1] “Currently serves as the Co founder & Executive Director of ORDI (Organization for Rare Diseases India), an Umbrella organization that represents 7000+ diseases in India.” — Organization for Rare Diseases India. Source
We record a founder only where the organisation's own site or a published article says so, and cite it above. We don't publish personal details.
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